#1 Doctor - Dr. Phil Green (cant tell you where he is otherwise he would become to overbooked lol...) on speed dial....
#1 CF Doctor- Dr. Reyes OKC also on speed dial....
Delta F508 Gene Mutation P N1303K Gene Mutation CF Source Vitamins (2x/day) Creon 10 (10-13x/day) Prevacid (15 mg 2x/day) Xopenex (2x/day via Neb) Hypertonic Saline7%(2x/day via Neb) Pulmozyme (1x/day via Neb) Azithromycin Abx (5ml Mon, Wed, Fri)
Bactrim Abx (2x per day)
Symbicort (2x per day)
Airway Clearance Therapy (20 min - 2x/day) High Calorie Smoothie (made special by mom) Love 100x/day Baseball 1x/day
Lovin to Live it and Live it well........
My name is Marcy, and I have a wonderful family, they love me just the way I am (No matter how many times that changes in a day, and believe me its many times). Together my husband and I are raising an army, we have one girl and three boys.....Our three oldest are in High School and our youngest is 5. I am a number cruncher, love photography and drink all night, coffee that is..... Plans are always crazy, so am I, spur of the moment a must, and Everything is Always unpredictable, yet it all makes life worth it. I strongly believe we are all Crazy only some of us have come to terms with it and some of us havent lol... I have climbed mountains, fell down mountains, and at times wanted to jump off a mountain (I am sure other people wanted me too at times as well). I am extremely competitive, always up for the challenge, and am probably self destructive in many ways lol... when our youngest son Lane was diaganosed with Cystic Fibrosis I started to see life with a whole new pair of glasses. I have realized how much I have taken for granted, how often I have allowed precious opportunities to escape without me embracing them, and how often I have not slowed down to enjoy the right now... We have three children in high school, and I see how fast they really do grow up... I look forward in anticipation to seeing my life with my eyes wide open.... I thought I had already learned so much in life, earned enough battle scars, but now I realize the hardest but most rewarding stretch is yet to come, and the first half of my life was only practice.... In Lovin Lane my relationship with God will strengthen... In Lovin Lane our family has already became closer, and our family will continue to grow in ways we cannot imagine, and we will all do it together one day at a time. In Lovin Lane, God will touch each of us by the true meaning of life, and we will forever be changed by our Journey. Life is great, terrible, happy, sad, impossible, achievable, a constant challenge, and something I was once just trying to survive... Now..... Now I realize I am not just going to try to survive, I am going to LIVE... So join me as I navigate through the unknown.... Laugh with me, cry with me but most of all Live.... make it what you want, but live it and live it well!!!!
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