Wednesday, December 19, 2012

STUFF THE STOCKING 2012 What a Success!!!

We would like to thank all who have embraced the Lovin Lane Stuff The Stocking 2012
This project is near and dear to our hearts and is ONLY possible by the support of so many individuals, businesses, and organizations that believe in our dream to bring smiles to patients battling chronic and life threatening illnesses. Thank you for your commitment to bringing smiles to so many... We of course want to thank everyone that made this possible, it takes so many to help us raise money, raise items, stuff stockings, deliver stockings, and spread the word!!!   If you have any photos of your group helping with this project please submit them to me we would love to share them!! 

We Stuffed nearly 30 stockings and we were able to help several different families within our communities, by giving a stocking to a child with a chronic or life threatening illness and one to their siblings as well this year, we were also able to provide stockings for several patients at Integris Baptist and we are on the waiting list to receive calls when our local hospitals receive new admits...

A special thanks to all our Anonymous Angel Sponsors
I know there are many of you angels who have given and we thank you all!!   
Each of you make a huge impact to make this happen, without donations we have no stockings to stuff... 


Angel Sponsors & Volunteers 

Noc Student Nursing Association
We can not thank all these nursing students enough in helping us raise, stuff, deliver and bring awareness to our cause, you have made a huge impact on Lovin Lane over the last two years and brought smiles to many familes...
    
DCLA High School
DCLA High School joined us this year, and we want to thank DCLA principal  for allowing your students and staff to embrace this project and making a huge impact on our success this year. A special Thank you to Morgan Thompson for introducing DCLA to our project, and to Lorrie Desbien for helping the students make flyers and promote this event. 

Medford FFA
So excited to have these FFA students embrace Stuff the Stocking this year and for Holly introducing us to them... You have truly blessed our patients this year!!!

Our Corporate Sponsors
 We want to thank these sponsors, they made a huge impact on our stocking this year, allowing us to make sure we had enough for all our patients and that each stocking was blessed with wonderfulness!!!      
Shebester Bechtel Inc.
Bruce E Dale, CPA
Shepherd Oil Company 
Spence Insurance Agency Inc.
Southside Spirits
Taco Mayo ~ Blackwell
B'Loved
Simple Simons ~ Blackwell
Blackwell Community Foundation


Best Western ~ Blackwell
A huge thanks to the hotel for giving us a space to stuff our stockings, as you can imagine from our pictures it takes a good size area to get this task done, and they were gracious in allowing us to take over for a few hours to assemble the stockings....  

Individual Angels
These angels helped in so many different ways from advertising this event, collecting donations, donated items themselves, helping us to spread the word, stuff stockings, and deliver stockings... 
Truly the  Lovin Lane Army of ANGELS
Joe & Andrea Cassidy 
Brytney Cassidy
Kaylee Dice
Darlene Wieland
Taylor Billings
Dennis and Diane Moss & Chesney
Dale
Tasha Smith
Kalyn Delaney
Morgan Thompson
Gabby Psikal
Ashley O'hara
Maranda Austin
Dusty & Brooke Day
Lane Decker
William Decker

I want to extend a special Thank you to Tasha Smith from the NOC SNA, she is was 
instrumental in all areas of our project this year, and she spent an entire day delivering stocking to Integris 
Baptist, and we cannot thank her enough for all her support!!!  


Check our our fun photos, and if you have any please send them our way so we can include them~

This is Morgan with Lane, she is representing DCLA delivering all the wonderful items that the DCLA Highschool raised.  
These are all pictures with our volunteers as we start sorting and stuffing!!












Morgan, Lane, Kalyn and Tasha writting out Christmas Cards!!
Andrea Cassidy and girls helping with Christmas Cards!!
Andrea Cassidy, Kaylee Dice, and Brytney Cassidy ~ This beautiful family has supported Lovin Lane from the beginning and we are always so grateful for all the support and love they have shown us!! 


Kaylee, Andrea, Brytney, Maranda, Morgan, Tasha, Kalyn, Gabby, and Lane
What an amazing group of volunteers!!


WE ARE BLESSED!

We are continuing to collect items and are going to be working towards next season but also will be attempting to make special baskets to take to admitted patients throughout the year! If this touches and tugs at your heart, please consider donating items or monetary donations, or if you have an organization that would like to do a drive throughout the year we would love to have your support!! Also if you would like to be on our list of volunteers please let me know!!! so that we may continue to bring smiles everyday!!! Much love and thanks to all who support us!!! Contact us at lovin_lane@yahoo.com or Call Marcy at 580-491-9158  

Tuesday, November 13, 2012

STUFF THE STOCKING 2012



LOVIN LANE PRESENTS
ANNUAL
STUFF THE STOCKING

Now Through Dec 10th

We will be collecting New Items to stuff these awesome stockings


Stockings will benefit
 Hospital pediatric patients (0- young adult), to bring smiles to children who have to spend the holidays in the hospital... Last year we delivered stocking to the Cystic Fibrosis patients that were in inpatient at Baptist Medical Center and Childrens Hospital, and we were able to provide a stocking to ALL the children battling varies Cancers last year at the Childrens Hospital in OKC.   
ALSO
Children (0- young adult) living in our local communities who have been diagnosed with a chronic or life threatening illness, and there siblings. Families who care for a child with special needs are often faced with enormous financial hardships due to traveling to appointments, medications, treatments, and co-pays.. We want to assist these families this season by providing stocking for there child, and we want to also include their siblings living in the home... Siblings are ANGELS who play a HUGE role in helping and supporting their brother or sister, encouraging them through treatments... If you know of  a child in the hospital, or a family within the surrounding communities that would benefit from Stuff the Stocking please have them contact us through this site, on facebook or email us at lovin_lane@yahoo.com 

Some suggested items are-
* Art supplies, sketch books and craft activity kits for all age groups
* Board games, card games or puzzles
* Books, word games, word searches, Sudoku or learning activities for children, teens and adults
* Bubbles and bubble tumblers
* Crayons, coloring books, colored pencils, markers & fuzzy posters
* DVDs and portable DVD players (new releases are always needed)
* Pajamas, slippers and lounge wear for children and teens
* Plastic toys! trucks, cars, stacking toys, light up toys, play sets – toys, toys, toys (all plastic, please)!!
* Pop-up, I-spy or push-button books
* Bath & Body for teens, sweats or t-shirts for children and teens
* Cozy washable blankets, these are great, even the $5 blankents that come in a roll were a hit
* Video games and game systems or hand-held games
* GIFT CARDS and ROLLS of QUARTERS for vending machines (for inpatient)  - are always needed
Do to the inability to clean them PLEASE NO STUFFED ANIMALS

If you are interested in being a special Elf and want to be a drop off location, adopt a stocking or include your business please contact me Marcy at 580-491-9158, drop me a message on facebook or send me an e-mail at lovin_lane@yahoo.com It takes alot of special Angels and Elfs to make this project a success and we are so grateful for each of you....

Drop off locations

Blackwell
Simple Simons Pizza
  
Tonkawa 
Student Nursing Association 
Have joined our cause again this year and we are so happy to have them on board
 NOC Tonkawa Campus 

Ponca City
Beloved Boutique


SPONSOR A STOCKING 
Any Family, Group, Business, Club
can adopt an entire stocking
 to stuff and decorate however you would like
This is GREAT for creating a stocking
In Honor or In Memory of a loved one
If interested contact me and I will get you your stocking and details 


For more details or information contact Marcy (580) 491-9158 
 Please feel free to leave any comments or suggestions to make this an even better project, as well as suggestions for the hospital patients, as I know many of our fellow bloggers have been in the hospital and have some great ideas!!!

Tuesday, October 30, 2012

CFF Patient Registry

The CFF 2011 Patient Registry is crammed packed with alot of great information and I have found it extremely helpful so I wanted to pass the resource along..

http://www.cff.org/UploadedFiles/research/ClinicalResearch/2011-Patient-Registry.pdf


It takes a bit to load but worth :)

Wednesday, October 24, 2012

Where did 2012 Go....

It seems like we have not updated in awhile, mainly because I guess we have just been settling into alot of new this last year Kickin CFs Bum, Surviving Cancer, High School Graduations, Military Graduation, Children growing, Baseball Playing and lots of family lovin...

 I am soooo happy to report that I completed my chemo spent alot of time healing and am doing GREAT!!! Still have to go in for regular scopes as my cancer was aggressive and has a high rate of return, although the cancer and treatments have left me with alot of residual issues and other diagnosis's to deal with, I am ALIVE and God has blessed us with my healing and we couldn't be more grateful for my health...

 Lane has had alot of changes in this year and we are taking alot of time to work through some of the different things that have come up, as well as wrapping my head around some of the news... He contacted a super bug last year about he same time I was undergoing treatment so we have been treating that.. It is a determined little bug and so Lane has had to stay on antibiotics all the time now taking bactrim and zithromax year round, so that is a little disheartening, nobody wants their child to be on this much antibiotics all the time, but its doable and for the most part is keeping the super bug at bay...  Recently his system seems to be attacked again lowering his lung function and O2 so we turned it up a notch with some high dose powerful Zyvox (antibiotic) to put that nasty little super bug back in its place.... He has had a terrible start to the 3rd grade between catching some bugs that took him out and dealing with alot of digestion issues along with DIOS he has had to miss alot of school and has spent alot of days just feeling miserable...  We are working hard at getting him lined out so he can enjoy the rest of the 3rd grade... and hopefully I can get caught up on blogging, which in the past has been so therapeutic for me...  So the recap of 2012 begins.... 

Sunday, January 1, 2012

STUFF THE STOCKING ELFS 2011

 These are the precious Cassidy girls who all so generously helped with donations for our stockings..

 WOW!! Look at all these awesome donations!!! 


 Trying to organise all the stockings!!!



 Dr. Reyes and his team at Integris Baptist Medical Center in OKC were the recipients of some of the Stocking
My precious daughter after she helped me haul all those through the hospital.. What a trooper!!
The Blackwell High Student Government directed by Kim Fehring played a huge role
in the success of this event!!

A HUGE thank you to Sasha Stierwalt and the NOC Tonkawa Nursing Students as they involved
several organizations throughout Northern Oklahoma College
NOC Student Nurse Association
PLC
Phi Theta Kappa
Kappa Beta Delta
Civitans Club
Images 3 Photo Club
Jeanine Deterding
Tasha Smith and Family
Mark Estep
Blackwell Walmart
Brace Books
TJ and Nicki Greenfield
Liz Jackson - Jackson Nutrition
Ree Drummond
Huttons Pharmacy
Brooke Loveall and Simple Simons Pizza
The Fox
Mimis Stiches
Sean Klufa
Brandy Chilton
Kali Cranford
Linday Ross
Vicky Mondo
Ashely Ramirez
Joe and Andrea Cassidy and Family

and MANY MANY anonymous ANGELS -
whom dropped off lots of toys and items at our drop of locations


Many many business and individuals within the community to make this project a success
we delivered 50 yes 50 huge stockings putting smiles on children's faces throughout the season!!
Stockings were delivered to individual children in Blackwell OK, Ponca City OK,
Baptist Medical CF ward, and patients through Dr. Reyes CF Clinic,
 The Children's Cancer wing at Children's Hospital OKC,
 The Cystic Fibrosis Wing at Children's Hospital OKC
We could have never have done this without the outpouring of Love from all of you

A huge thank you to all that made it possible to have such an amazing event for 2011!! 

Tuesday, November 1, 2011

LOVIN LANE PRESENTS~ STUFF THE STOCKING

LOVIN LANE PRESENTS

STUFF THE STOCKING

Now Through Dec 5th

We will be collecting New Items to stuff these awesome stockings
Stockings will benefit hospital pediatric patients, as well as pediatric patients at home who 
are diagnosed with a cronic or life threatening illness ages 0-21   


Some suggested items are-
* Art supplies, sketch books and craft activity kits for all age groups
* Board games, card games or puzzles
* Books, word games, word searches, Sudoku or learning activities for children, teens and adults
* Bubbles and bubble tumblers
* Crayons, coloring books, colored pencils, markers & fuzzy posters
* DVDs and portable DVD players (new releases are always needed)
* Pajamas, slippers and lounge wear for children and teens
* Plastic toys! trucks, cars, stacking toys, light up toys, play sets – toys, toys, toys (all plastic, please)!!
* Pop-up, I-spy or push-button books
* Toiletries in travel sizes, *Bath & Body for teens, sweats or t-shirts for children and teens
* Cozy washable blankets
* Video games and game systems or hand-held games
* GIFT CARDS and ROLLS of QUARTERS for vending machines - are always needed
Do to the inability to clean them PLEASE NO STUFFED ANIMALS

Drop off locations
Simple Simon's Pizza in Blackwell
Renfro Center NOC Tonkawa Campus 

OR

WIN A PIZZA PARTY
Simple Simon's in Blackwell is sponsoring a pizza party for the
Any Group, Organization, Business, Club, or Family
that raise the most for STUFF THE STOCKING
if you would like to win a pizza party please contact us......

OR

SPONSOR A STOCKING 
Any Family, Group, Business, Club
can adopt an entire stocking
 to stuff and decorate however you would like
This is GREAT for creating a stocking
In Honor or In Memory of a loved one
If interested contact me and I will get you your stocking and details 

For more details or information contact Marcy (580) 491-9158 or Sasha (580) 363-0754
 Please feel free to leave any comments or suggestions to make this an even better project, as well as suggestions for the hospital patients, as I know many of our fellow bloggers have been in the hospital and have some great ideas!!!

Monday, October 31, 2011

Owning 2011

WOW WOW WOW so much to update I don't know where to begin... I (we) started this year saying we were going to OWN 2011, I have been thinking alot about that lately... what does that mean.... We went on a Make a Wish trip at the end of 2010 and boy was it a trip of a life time, with our entire family... That trip seemed to be the big hooray before the craziness of storm 2011 would bring... My dreams for 2011 were for us to have a peaceful, calm, uneventful, HEALTHY year..... and truth is I have not blogged because I really wasnt ready to share it.... So far this year Lane has been sicker than I had hoped, nothing compared to what it could have been, but more than we would have liked, and he also contracted some very serious lung invader's, which I am still trying to wrap my head around, his lung functions fell some and although he still runs around as if nothing is wrong, somethings are still wrong..... culture after culture we have come back clean for 7 years and I have thanked God that we were maybe just MAYBE in the minority of this crushing CF disease, and to receive a call that NOPE you have not evaded the reality... It takes your dreams for the future and crushes them ALL OVER AGAIN..... In addition 2011 brought many days of ME being ill, of which I couldn't understand what was happening or why I was in so much pain, part of me thought something was REALLY wrong and the other part of me though NO WAY would lightening strike again, I don't even think it is possible, until I landed in the hospital with a diagnosis of bladder cancer... YEP 37 (which is quite young for bladder cancer, way to young) with bladder cancer... To say the least it was a shock to our family and after a few surgeries we are still currently undergoing treatments and  I have a great support system, but the fact remains I have missed for the first time EVER in 19 years my kids 1st day of school... Lane's first day of the second grade.... Mothers are not meant to be taken out by any illness and the biggest struggles for me have been all the doctors and hospitals, and being bed ridden, and drugged.... I learned REALLY FAST that no one but my husband and myself really know how to take care of our little Lane, and thats a problem we are trying to fix now... letting go of some of the control, whew that is a big one...    Never in my wildest thoughts did I ever think that I would be 37 struggling to emotionally and physically and spiritually get myself through cancer as well as trying to get my son through all his needs with cystic fibrosis, as well as trying to be a mother to our other children and a wife too.....I think I am honestly still in shock... LOL but have a good sense of humor about it all...  I really haven't blogged because I one have been ill, and limited in where and what I do but also because this year has been EXHAUSTING from the start, and we are still trying to come to grips with everything, it is life changing yet again and we have to  and start figuring it all out all over again.... So many things have taken the back burner which I am not happy about the lose ends I feel I leave everywhere, it weighs heavy on me all the balls I have dropped..... I guess as I look at the OWNING 2011 it takes on a new meaning ~ one of not just surviving, but one of making it through and being grateful that we had such a big HOORAY to hold on to for this entire year, grateful for all our friends and family that have so graciously helped us, and grateful that CF nor CANCER can take the JOY out of the family.. Holding on to the littlest of moments as they are often the greatest......  We are faithful that God has taught us that he will not lead us down any path that he will not walk beside us through, and he continues to bless us each and every day.... So where do we go from here, well we put on our boots and forge on, God has way more in store for our family than illness, and he will make it all happen... So owning 2011, is all about OWNING how WE are going to handle everything that has been thrown our way, with grace, faith, trust and a whole lot of laughter and  WE ARE OWNING IT :)

Sunday, June 12, 2011

Love me some baseball no matter what!!

This has been a really rough ball season for Lane... For the past three months he has been sick most of the time and have had to double up several times on antibiotics to maintain.... In addition he lost weight and has not been able to gain it back... He had chest pain after most games and terrible drainage.... It has been very hard for me to continue to do the best you can do and still have a sick kid...  It is his favorite season of the year, ball season, and I just want him to feel his best, but it has been hard feeling like his best is just less than it was a year ago :( ....... But let me tell you Lane NEVER lets on to anyone that he is feeling bad, he plays hard and never quits and that is what is all worth it to me.... So even though he is now all stopped up all over again and he slept for 13 hours straight after yesterdays tournament... This was his smile face yesterday!!!! Gotta Love THAT BOY!!!!    

                              And this is for all you CFers out there....





Saturday, May 28, 2011

In God I TRUST!!!

You always hear the usual stories of pennies on the sidewalk being good luck, gifts from angels, etc. This is the first time I've ever heard this twist on the story. Gives you something to think about.....




Several years ago, a friend of mine and her husband were invited to spend the weekend at the husband's employer's home. My friend, Arlene, was nervous about the weekend. The boss was very wealthy, with a fine home on the waterway, and cars costing more than her house.



The first day and evening went well, and Arlene was delighted to have this rare glimpse into how the very wealthy live. The husband's employer was quite generous as a host, and took them to the finest restaurants. Arlene knew she would never have the opportunity to indulge in this kind of extravagance again, so was enjoying herself immensely.



As the three of them were about to enter an exclusive restaurant that evening, the boss was walking slightly ahead of Arlene and her husband. He stopped suddenly, looking down on the pavement for a long, silent moment.



Arlene wondered if she was supposed to pass him. There was nothing on the ground except a single darkened penny that someone had dropped, and a few cigarette butts. Still silent, the man reached down and picked up the penny.

He held it up and smiled, then put it in his pocket as if he had found a great treasure. How absurd! What need did this man have for a single penny? Why would he even take the time to stop and pick it up?



Throughout dinner, the entire scene nagged at her. Finally, she could stand it no longer. She casually mention ed that her daughter once had a coin collection, and asked if the penny he had found had been of some value. A smile crept across the man's face as he reached into his pocket for the penny and held it out for her to see.. She had seen many pennies before! What was the point of this? 'Look at it,' he said. 'Read what it says.' She read the words ' United States of America .' 'No, not that; read further.'

'One cent?' 'No, keep reading.'

'In God we Trust?' 'Yes!' 'And... ?'



He explained, 'And if I trust in God, the name of God is holy, even on a coin. Whenever I find a coin I see that inscription. It is written on every single United States coin, but we never seem to notice it! God drops a message right in front of me telling me to trust Him. Who am I to pass it by? When I see a coin, I pray, I stop to see if my trust IS in God at that moment. I pick the coin up as my response to God; that I do trust in Him. For a short time, at least, I cherish it as if it were gold. I think it is God's way of starting a conversation with me. Lucky for me, God is patient and pennies are plentiful! '



When I was out shopping today, I found a penny on the sidewalk. I stopped and picked it up, and realized that I had been worrying and fretting in my mind about things I cannot change. I read the words, 'In God We Trust,' and had to laugh. Yes, God, I get the message.



It seems that I have been finding an inordinate number of pennies in the last few months, but then, pennies are plentiful! And, God is patient..



Thought for the Day:



If God had a refrigerator, your picture would be on it.



If He had a wallet, your photo would be in it.



He sends you flowers every spring.



He sends you a sunrise every morning Face it, friend - He is crazy about you!

Monday, March 28, 2011

Appointments Appointments Appointmets

It seems I am always one step behind... These are pictures of our visit this last month which went very well, Lane's PFT were actually up from his PFTs done at Christmas, so that was a nice and welcoming surprise. I think he is still really learning how to accurately perform the PFTs so I do not put to much weight in them at this point, but it was still a blessing they were increased... His weight also increased so blessing all around...

However I will ask for some prayers this coming Wednesday, we already have to go back to the city again and it will be a LONG LONG day.. First of all he has to fast, so that leaves a two hour morning drive with NO food or drinks - boo..... Good thing he is not a morning person, but it still sucks.. this is to test his glucose levels... Then we also have a morning full of appointments as well as blood draw (which he HATES, but he is so BRAVE and holds the tears in) and then X-Rays, then we get to break for lunch ( and we are blessed to have a Chuck E Cheese coupon YAY thanks Kelly for snagging those from the newspaper for us :) so hopefully we have enough time to run there and eat,  then we have to go back to the hospital for some more appts... So needless to say it will be a LONG LONG day and my lil roo will not be happy... So prayers are always appreciated for a peaceful, FUN (cuz we always try to add some in), easy on the pocket book (cuz I am afraid these appointments are going to cost me more), as well as safe travels... 

In addition we got some concerning results back from one of our other children, so need some prayers that in the next few weeks we are able to finish the required tests on them and that all is okay....

   Lane puttin on the pounds  
 Lane doing his Pulmonary Lung Function Testing....

Tuesday, March 8, 2011

WWMR CF_Panel

Okay we are barely just squeeking by here lately and I am happy to say I did one survey today concerning CF which took about 45 min of my time on the phone, and will receive $150.00 say CHA CHING... This survey is now currently closed, but

Then I was referred to the  WWMR CF research panel and got another $50.00 just to register to be apart of thier surveys in the future ( of to which you can accept or decline which ever surveys you want to participate in) and I will get paid for those as well.... AWESOME...

You will receive $50.00 just for signing up and I will receive $50.00 for referring you when you tell them Marcy Decker sent you :)

Wow how awesome is that!!! God Bless!!!
If any of you are living with CF or are a caregiver of someone with CF and want to register to be apart of future surveys contact wwmr at   1 (888) 947-2339 then push ext. 3, or email them at CF_Panel@wwmr.com I did both

Saturday, February 5, 2011

Lane's Make A Wish Pics continue..

We still have some photos from our trip that we wanted to share.....  

This was Pirates of Caribbean night, and lane played the perfect Jack Sparrow lol....

Gotta love his dramatic faces lol lol



Fireworks at sea... Awesome.... 
Lane pooped out, he played hard that is for sure.... 
Tropical Storm, later turning into Hurricane Nicole.... NOT COOL, we didn't get to go to the Disney Island due to the inability to dock, but we found fun things to do on the ship :)


OMG Lane loves Cluto ( yes I know it is Pluto, but lane insisted it is Cluto lol lol)  





Boy did we have luggage ugh...

OMG this kid scares the tar out of me, he was running backwards on the people mover ugh.....


Everything except one black bag is medical related.... OMG
Lane LOVES SPONGEBOB

I am telling you he just kills me with his drama lol lol.... This is Harry Potter
I guess he didnt care about the DO NOT CLIMB SIGN LOL
Crash on Plane
BTW Southwest was great about bumping us to the front of the line.....
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