Wednesday, October 6, 2010

At Sea With A Sick CFer, WHAT DO YOU DO???

First thanks to all our blogging friends and well wishers our vacation was absolutely fantastic and GREAT family times.... I just wanted to say thanks to you all for your prayers for a safe trip....





Now to the serious parts:




Okay well you know when you are packing and you feel like your always throwing in more than you think you will need (just in case).... Well with a CFer I have learned it is always better to be safe than sorry.... and I may have to pack alot, but I had better do it.....


I boiled a weeks worth of neb cups.... Which I am sooooo grateful I had, cuz I dont know how I would have taken care of that.... I had been ordering and saving extra Pari's for many months now and had just enough to get us through the week....

So I packed every daily med he is on ( which is an entire pharmacy as it is)and then to be extra sure I packed extra gloves, masks (just in case he was exposed to something bad, he refuses to actually use them) threw in some Tylenol, Ibuprofen some Benadryl just in case there is a bee flying around at sea ( odd I know but hey he is allergic so I wanted to cover my bases.... Lets see, I threw in cold meds just in case oh and don't forget Lane is already on daily antibiotic, but I got two other antibiotics just in case he got sick on the trip and needed more.... So I got that covered...... Tons of Germ X, which some leaked in my bag of course.... oh and he never really uses the Dulcolax, in fact I think he only ever needed once, but what the heck I threw it in there as well... Okay so the stack of suitcases on the right are all medical related (minus and Ice Chest, since it got confiscated) and one of the black suitcases is also medical... and below you can see we have our share of luggage, all this is our family and our suitcases lol and this isn't including mine, as I am toting it with me as I am taking the picture lol...So as a family let me tell you we had some luggage and we didn't check in any of the medical stuff we carried it on every flight with us to ensure it wasn't lost or damaged..... So we were always toting it around, well I should say my wonderful husband was always toting it around..... And believe me you start to question if it was ALL necessary even though you know it is.....





And then it happens.....




Lane never complains, okay well let me rephrase that, Lane does complain of stomach aches and pain here lately but he is really tough and it takes ALOT for him to complain, so when he does you know something is wrong and he really doesn't feel good... It takes ALOT to get him down..... and he NEVER cries .... He is really really tough, sometimes we think too tough, cuz it takes a bit for us to realize when something is wrong, we have to constantly ask him to tell us so we know....




Well day two into our trip and our 1st night at sea ( yea folks at sea away from EVERYTHING) Lane wakes up from a dead sleep at 4 in the morning CRYING..... His stomach was as hard as a rock and he said his bottom and his stomach hurt.... Like I said Lane NEVER cries so I knew it had to be bad, and as he sat on the toilet he just cried with NO relief... I was a little panicked okay a little more than a little, cuz I am thinking oh my we are at sea, and I am well aware that CFers can easily get a bowel obstruction, or prolapsed Colon among other things...




What do you do???? Let me tell you I PRAYED, and PRAYED and PRAYED some more .... and I remembered I tossed that Dulcolax in the bag, maybe just maybe that would help..... I gave Lane a pill, and rubbed his back till he fell back to sleep, and I laid awake praying that would do the trick... I tossed and turned and prayed the rest of the night.... Lane also had his beach adventure in Nassau the next morning which is the biggest thing he was waiting for, The Beach, and I soooooo did not want him to miss it....






AT 7 Lane awakes and straight to the bathroom he went, and stayed there for quite awhile... I thanked God for taking care of my lil guy and for prompting me to throw that little bottle of Dulcolax in the bag (we will NEVER leave home without it again).... It is during times like these that I realize just how fragile my little cfer is, and although he is CF MADE TOUGH, I will ALWAYS over pack and never complain about it again.... I couldn't imagine what we would have done, had I not had that one little pill.... Yes they have a Doc on board, but I doubt he would have been really familiar with CF, and there was no where to buy any drugs.... I am just sooooo grateful it turned out so well..... GOD IS GOOD....

3 comments:

  1. Wow! What a blessing you packed that!!! You're a fabulous mommy.

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  2. I totally understand how you feel. Packing for as long as a weekend makes me insane and I have yet to brave an airplane. I am glad you were prepared and everything turned out well.

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  3. I love that you talked about God and poop in the same post. You're my kind of lady! ;)

    In all honesty, I'm glad he got feeling better. I'm loving these pictures, even though they make me crazy jealous. And in my 23 years of this CF life, I have NEVER seen that many nebulizer cups at once!

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