Danny Ferrone_Danny's Morning "NEBULIZER" - Another Breathing treatmen...

When I came across this video it totally made me want to cry... No one should have to go through this daily...

Coughing, coughing, and still coughing....

This last week two weeks, Lane has been a little under the weather.... Took him in last Tuesday to the doctor and his lungs were clear just ear infections with all the drainage.... Wednesday and Thursday he seemed to have nipped it and sounded great, coughing to a minimum.... Yeah ... then Friday coughing again all weekend long.... Stools are terrible.... So kept him home again today hoping to get some of that out..... He is actually NOT coughing at the moment and I actually feel really bad going in there and making him start all over again.. UGH.... I really don't like this part... :(

The verdict is in... Or is it... I think I am still confused... Who knew...

Okay so the verdict is in.... What could be wrong with the coughing coughing hack up a lung coughing kid.... No fever, vomiting, diarrhea, or any complaints of pain.... No lack of bouncing off the walls... Just freaking people out with hack up a lung coughing.....

No Fever (which kinda seemed weird to me, cuz his eyes were sure red)

okay xrays clear ( that is always awesome to hear)

CBC count great (always good news)

Ears not so good ( ugh where did that come from)

Yep just a whole lot of drainage in the head and sinus ( go figure those sinuses) which in turn caused double ear infections....

Still wondering what happened to the fever, and bummed because he was already on an antibiotic, that just didnt work this time due to just too much mucus..... But I do think the antibiotic helped it not get worse...

So I guess it is probably a combination of both.... Prolly got some of my good ol cold last week and combined with the CF is producing way too much mucus....

So the whole point of this post was to determine if I could judge with any reasoning what so ever what was going on with him and well I blew it, of course lol.... I did think he obviously had alot of drainage going on, but never considered the ear infections... So I guess I learned a little more....

But seriously the coughing is out of control, which I am so not use too.... And I can easily see how it freaks out everyone else, cuz it freaks out me....

So we have just added an additional antibiotic to the cocktail, and hopefully that will do the trick, if not maybe we will change the channel ( seeing how Lane's believes he was contaminated from watching the wrong cartoon lol kids)

I do feel bad for my CF Made little guy, because seriously it has got to hurt to cough that much and that hard....

CF or BUG???

Coughing Coughing Coughing... A quick reminder of the roommate inside.... Ugh.... So here is where I am always lost..... excessive coughing and no other symptoms... No fever, no green stuff that I can see, no vomiting, or diarrhea, just coughing coughing coughing.... So what is it???? Is it CF, or is it a bug??? Lane is always on an antibiotic, which really helps but sometimes leaves me even more confused..... This is the part I hate, my inexperience of not knowing anything, the part where as a parent I feel completely inadequate..... so we are going to go to our regular doctors office here to determine..... So any help out there is always appreciated.....


CF or BUG

I might add that Lane actually said that all the coughing was due to the cartoon he was watching, cuz that was when it all started.... lol if it was just that simple, it would be soooo easy to just change the channel.....lol

IS HE CHOKING? GREAT NEWS....

Great News!!!!!



So today was the first time I think we really worried someone by Lane's coughing... The last few days he has been having some coughing fits. We had to got to a few Dr. visits in OKC and stopped off at McDs for lunch... He sounded terrible and several times today people were staring at us wishing they could come up with enough courage to say "TAKE YOUR SICK KID HOME". Seeing the cloud of worry take over their faces, I tried to reassure each of them: No worries, he is not contagious and does NOT HAVE THE SWINE FLU, or whooping cough, bronchitis or any other cough producing contagious illness.... He just has CF no worries.... It is amazing how they take a sigh of relief, and quickly engage in conversation.... There life has been spared... Like I said, this was our first experience with this situation (previously, before diagnosis I probably thought he was contagious, and kept him home) and it really was amazing how uncomfortable it made people feel, and I am sure more so because of the swine flu.....



Anyways back to my GREAT NEWS!!! In Mc Ds, Lane starts have a serious coughing fit, and people just kinda started starring, some I am sure out of concern and some out of fear of infection.... This kind older Lady says afterwards "was he choking?" . Which by the way I thought was the best thing she could have said. I think she was concerned for him, but her little 3 year old grand daughter as well.... Of course she did not want her little one sick with some crazy illness she caught from some little boy whose mother doesn't have enough sense to keep him home away from the rest of the population.... Of course she didn't say that, but really all of us mothers think that... *keep your sick kids home* Right.... So anyways, I really think she said the perfect thing..... Was he choking? Which showed her concern as well as opened the door for me to say oh no he has the swine flu..... Just kidding.... So I express to her, no he is not choking, and that I know he sounds really bad, and most people would be concerned he was contagious but that he is not he just has CF....



She says, "really, hmm my grand daughter is a carrier"

This totally took me back since most people don't even know they are a carrier.. so of course I asked further... How do you know she is a carrier of CF?



Ding Ding Ding....

NEWBORN SCREENING!!!



Here is the great news everyone....



We live in Oklahoma, and Lane missed the screening by less than a year, leading to him being misdiagnosed for four years...

So here this little girl (thanks to the state mandated newborn screening) knows she is a carrier.... This is the first time I have personally had someone tell me that in Oklahoma... so YEA to STATE MANDATED SCREENING..... WHOOT...

This is what treatments have looked like the last two weeks... Kindergarten is wearing him out!!! But he's LOVIN it.....