PFT Results and Denufosol Tetrasodium Inhalation Solution

We went back to OKC today... Got the rest of the numbers form last weeks Pulmonary Function Test... Thanks to the help of RunSickboyRun, I think I got it this time.... Thanks Ronnie... (but please correct me if I am wrong..)


FVC ( Forced Vital Capacity ) Predicted 1.23 Lane 1.08 Lane's FVC=88%

FEV1 ( Forced Expired Volume in 1 Second ) Predicted 1.08 Lane .83 Lane's FEV1=77%

FEV1/FVC (Combined) Predicted 92 Lane 77 Lane's FEV1/FVC = 84%

Based on this last PFT we qualified to do a trial (must have greater or = to FEV1 75%) for a new drug Denufosol Tetrasodium Inhalation Solution. (which might improve the body's ability to clear secretions out of the lungs. I will discuss this further at a later time, we are first finishing our Enzyme study (and I am curious to get our fecal fat test results). Although Lane was not diagnosed until he was 4, I know he had Pancreatic Insufficiency since birth... Of course I reported it to the doctors on several occasions but I reported it as diarrhea... So I am curious to see his results on both types of enzymes.

I mention the Denufosol trial because we would be able to closely learn more about the PFTs, allowing Lane to have allot of guidance over a years time on how to properly perform these tests. Age 5 is a common age to start PFTs, but by being so young it takes a little time to get the most accurate readings as possible... so it is a good opportunity now for him to learn from the get go.. and he loves shooting that Rocket to the Moon...

The Denufosol Trial sounds like a really neat drug... Is anyone doing this trial???

Also curious to talk with anyone about sinus problems in child, Lane has had allot of what we called sleep apnea, (pre Diagnosis) but basically he is snoring and choking in his sleep, due to blockage. Curious about other young children...